Imagine not being able to scratch your nose. Imagine not being able to take a drink unless someone is holding a straw to your mouth for you to sip. Imagine not being able to swat a pesky mosquito from your hand. Imagine not being able to move or sit and stand on your own. These are just simple things that all of us take for granted on a day to day basis. Now imagine being the father to an amazing and beautiful daughter and knowing that you won’t be there for her wedding or to hold her hand, waiting for the the music to start as your queue to walk her down the aisle. This is one thing that no one can imagine or wants to know is their reality. For the Niemuth family this became their reality when Scott was diagnosed with Lou Gehrig’s Disease (ALS) in April of 2012.
Scott may not be able to move on his own or be able to give you a hug back when you walk into their home, but he is still able to love his family and he is still able to have an amazing attitude and outlook on his days ahead. The spunk and humor he has inside of him has amazed me the few times I have been able to spend with him and his family. His speech may be slurred, but he’s still has jokes to brighten your day. Jo, his wife, is by his side day and night, selflessly caring and tending to his needs and loving on him every chance she has.
Jo contacted me saying that they wanted to do a special father-daughter ceremony so that Scott could see Kayla in a wedding dress and to share wishes and exchange rings with her before it is his time to go. A small gathering of family surrounded them as Scott’s son-in-law read letters out loud that Kayla and Scott had written to each other. Scott recalled when she was first born and how time has gone too quickly, he is amazed at the young, beautiful woman she has become. They then exchanged rings to signify that Scott will always be there, even on her wedding day when he won’t be able to share in the celebration or be there to give her hand in marriage.
Thank you to the Niemuth Family for allowing me to be part of such a special time! This is why I do what I do, to capture moments and stories like this. I hope that the days ahead bring much peace and love your way while allowing you to enjoy the time God had given you together.
Would you like to donate the ALS Foundation and help find a cure? Click here.
Leave the Niemuth family some love and kind words during this time! For every 25 comments on this blog post below they will receive a professionally printed 8×10 of their choice (and some more extra goodies)!
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Journalistic and intentional photography for the modern couple who wants to remember how they felt in the moment 20 years from now.